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Spastic Paraplegia Foundation - Hereditary Spastic Paraplegia & Primary Lateral SclerosisF Skip to main content Who We Are Overview Our History Board of Directors Scientific Advisory Board Corporate Documents PLS & HSP Overview PLS HSP Heredity and Genetics Differences Treatments Documents Donate Here Mail Check Giving Tuesday Fundaiser Create a Facebook Fundraiser Shop with Amazon Smile Donate by Credit Card Convenient Monthly Giving Convenient Monthly Giving PayPal ebay Combined Federal Campaign Planned Giving What We Do Overview Annual Conference Recap Privacy Policy Submit Proposal Research Impact Special Offers Get Involved Overview How to Help Ambassadors Upcoming Events and Support Groups Annual Conference Awareness Week Awareness Week Second Annual Virtual 5K Become a Corporate Sponsor SPF Patient Insights Network (Please Complete: HSP & PLS Patient Registry) Resources Overview Current Studies Seeking Participants Directories Physician/Clinic Directory Physical Therapists Government Aid & Charity Programs Genetic Testing and International Organizations Genetic Testing Links International Links HSP & PLS Forums Join Us & Receive Updates Patient Organizations for Other Neurological Conditions Self Help Guides Synapse Newsletter SPF Patient Insights Network (Please Complete: HSP & PLS Patient Registry) New to SPF? Welcome! Website Tour Join Us Join Us Who We Are Overview Our History Board of Directors Scientific Advisory Board Corporate Documents PLS & HSP Overview PLS HSP Heredity and Genetics Differences Treatments Documents Donate Here Mail Check Giving Tuesday Fundaiser Create a Facebook Fundraiser Shop with Amazon Smile Donate by Credit Card Convenient Monthly Giving Convenient Monthly Giving PayPal ebay Combined Federal Campaign Planned Giving What We Do Overview Annual Conference Recap Privacy Policy Submit Proposal Research Impact Special Offers Get Involved Overview How to Help Ambassadors Upcoming Events and Support Groups Annual Conference Awareness Week Awareness Week Second Annual Virtual 5K Become a Corporate Sponsor SPF Patient Insights Network (Please Complete: HSP & PLS Patient Registry) Resources Overview Current Studies Seeking Participants Directories Physician/Clinic Directory Physical Therapists Government Aid & Charity Programs Genetic Testing and International Organizations Genetic Testing Links International Links HSP & PLS Forums Join Us & Receive Updates Patient Organizations for Other Neurological Conditions Self Help Guides Synapse Newsletter SPF Patient Insights Network (Please Complete: HSP & PLS Patient Registry) New to SPF? Welcome! Website Tour Join Us Join Us Join Us Synapse Newsletter SPASTIC PARAPLEGIA FOUNDATION 1605 Goularte Place Fremont, CA 94539-7241 Phone (877) 773-4483 Contact © Spastic Paraplegia Foundation Facebook LinkedIn Twitter Instagram Paypal #Steps4BlairBear Virtual 5K Steps4BlairBear: $43,868 Raised Adli's Awareness Hot Dog Fundraiser Adli (SPG3A) raised $4400 Learn more about the foundation AMBITION IS THE PATH TO SUCCESS. Persistence is the vehicle you arrive in. ~ Bill Bradley Get Involved BE WHERE THE ACTION IS! Check our upcoming events VIEW EVENTS THE BEST WAY OUT is always through, ~Robert Frost Get Assistance SPF Vision The day when all individuals with HSP or PLS are diagnosed, treated and cured. Donate Welcome to SPF - (See News & Announcements Below) HSP and PLS are neurological disorders affecting the voluntary muscles. The disorders are progressive and may lead to patients being unable to walk, and more. The Spastic Paraplegia Foundation is dedicated to advancing research and finding the cures for two groups of closely related, progressive neurological disorders: Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia (HSP) . Our process is simple, time consuming, but effective. We work with a world renowned group of scientists that are all experts in the field of neurological disorders such as HSP and PLS. This group of scientists work with us on a volunteer basis, they live all over the world and we call them our Scientific Advisory Board (SAB). Every research proposal we receive is submitted to be reviewed, carefully analyzed and graded by at least 3 members of our SAB. Once or twice a year, our SPF Board of Directors goes to our SAB and asks them for their recommendations. The manager of our SAB, Dr. Martha Nance, collects, compares and contrasts all of the SAB reports regarding each research proposal and turns in their report card with recommendations to our Board of Directors. We almost always follow their recommendations to support the very best HSP and PLS research in the world. The sad part of this process is that our SAB, in recent years, has graded several more of these research proposals as blue ribbon excellent than we can afford to support. Your donations are greatly needed and will be used in the most cost efficient, effective method possible. Join Us and Receive Updates Become a part of a community that keeps you informed on the latest HSP & PLS News. When Clinical Trials begin in 2020 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission. Find out more. An Organization You Can Trust 87 cents of every dollar you donate goes into our mission of research and service. 7 cents goes to fundraising and 6 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation. Donate now. Please consider making a gift to The Spastic Paraplegia Foundation in your will and financial plan. Mail your check donation to: Spastic Paraplegia Foundation - 1605 Goularte Place - Fremont CA 94539-7241 Ph: (877) 773-4483 Tax ID#: 04-3594491 News & Announcements December 26 , 2020 Astrocytes eat connections to maintain plasticity in adult brains by The Korea Advanced Institute of Science and Technology (KAIST) December 19 , 2020 Our Good Friend and the editor of our Synapse Newsletter, John Staehle's obituary by Dignity Memorial December 17 , 2020 How the Economy is Actually Doing in Nine Charts by The New York Times December 14 , 2020 Significant New Funding for SPG4 Hereditary Spastic Paraplegia Announced by Peter Baas, Gerardo Morfini, Liang (Oscar) Qiang December 12 , 2020 New biomarker candidate for amyotrophic lateral sclerosis by Ruhr University - Bochum November 26 , 2020 Scientists develop new gene therapy for eye disease with implications for neurological disorders by Trinity College of Dublin View More News Powered by Firespring Our anonymous donor is matching dollar for dollar until January 15th 2021!!! 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