sp-foundationorg.presencehost.netSpastic Paraplegia Foundation - Hereditary Spastic Paraplegia & Primary Lateral SclerosisF

Spastic Paraplegia Foundation - Hereditary Spastic Paraplegia & Primary Lateral SclerosisF Get more information about our 2024 Annual Conference Join/Subscribe/Update Donate HSP & PLS New to SPF? Welcome! Website Tour Register/Update Overview PLS HSP Heredity and Genetics Differences Treatments and Therapies Get Involved Overview Donate Here Many Ways to Donate Current Fundraising Campaigns Planned Giving Memorial Giving Honoring Love Ones Become a Corporate Sponsor Events Events Calendar Annual Conference Overview 2024 Annual Conference Potato Pants at the SPF Annual Conference Annual Conference Sponsorships Past Annual Conferences Potato Pants 5K Run, Walk or Roll Year End Appeal Elleaire Fore Golf Tournament SPF Store Support Groups Support Groups Ambassadors Ambassador Volunteer Information Contact an Ambassador How to Help Volunteer on a Committee SPF Talks SPF Kids & Youth Resources Overview Register/Update with SPF HSP & PLS Informational Documents Directories Ambassadors Physician/Clinic Directory Physical Therapists Newsletter Synapse Self Help Guides Self Help Guides Incontinence Government Aid & Charity Programs Research Overview SP-CERN SP-CERN SP-CERN LOCATIONS SP-CERN Research Completed Research Funded Research Imaging of neuro-inflammation in PLS, HSP, and ALS Mapping Cortical and Subcortical Degeneration in PLS Other completed Research Research Grants Issued in 2021 & 2022 Research Grants Issued Between 2003-2020 Current Studies Seeking Participants 2023 Annual Conference Scientific Presentations Genetic Testing and International Organizations Genetic Testing Links International Links Submit Proposal Invitae SP/PLS Insights Network The Foundation Overview Our History Board of Directors Scientific Advisory Board Corporate Documents Media Public Service Announcements Search MENU Featured Slideshow Walker Walker has Hereditary Spastic Paraplegia SPG4 Register with us SPF TALKS Join our newest outreach effort Sign up today This is Maurya Maurya has Hereditary Spastic Paraplegia, SPG4 Learn about HSP Register for our 2024 Annual Conference Come and meet others like you Register Now Join our Community After being diagnosed with HSP, I found the SPF website and attended their annual conference. It was great to learn about HSP & PLS and meet others like me. Register now! SP-CERN Grant What is it? Click to learn more Volunteer on a Committee We have multiple committees for anyone to join: Education & Ambassadors, Fundraising, Marketing, Advocacy, and SPF Kids Learn More Go to Previous Slide Go to Next Slide Welcome to Spastic Paraplegia Foundation, Inc. HSP and PLS are neurological disorders affecting the voluntary muscles. The disorders are progressive and may lead to patients being unable to walk, and more. The Spastic Paraplegia Foundation is dedicated to advancing research and finding cures for two groups of closely related, progressive neurological disorders: Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia (HSP) . Learn about our process to fund research for HSP and PLS here. SPF Vision The day when all individuals with HSP or PLS are diagnosed, treated, and cured. We offer a wide range of programs to meet the needs of those affected by our disorders. New to SPF? Tour SPF Website and Join our SPF Registry! Register with SPF SPF thrives to accomplish our vision of seeing the day when all individuals with HSP or PLS are diagnosed, treated, and cured. Take a look. Events Join SPF Events, Fundraisers & Connections to help raise awareness, funds, and crucial resources to serve our community. SPF Store Get your SPF swag here! Many Ways to Contribute Donate to fund medical research using any one of the many ways, platforms, or services that helps SPF. Support Groups Find a Support Group near you or a virtual one. News & Announcements April 26 , 2024 The journey to a treatment for hereditary spastic paraplegia by Nancy Fliesler, Boston Children’s Hospital April 15 , 2024 Columbia gets $15M to design gene therapies for rare ALS forms by ALS News Today April 15 , 2024 The Best Small Town in Each State by Bradley O’Neil, The Discover View More News Our Impact since our inception... Dollars Raised Over 11,000,000 dollars for research! Linda Lafontaine I’ve been dealing with HSP for a very long time. Then I joined a support group and I found the Spastic Paraplegia Foundation. Hopefully I can spread awareness and get others to join the Foundation. Thank you to our generous sponsors. Joshua Cochran Toby-Becki Kris Brocchini The Conlin Foundation JCPenny Communities Foundation Carin T Gurliaccio Glow Natural Wellness Matt Hardin US Youth Soccer First Community Bank of the Heartland Chick-fil-A Mary Kay Anonymous Donors 1 2 SPASTIC PARAPLEGIA FOUNDATION 6952 Clayborne Drive O’Fallon, MO 63368-6202 Phone (877) 773-4483 Email: information@sp-foundation.org Facebook LinkedIn Twitter Instagram Explore HSP & PLS Get Involved Resources Explore Research The Foundation Media The Spastic Paraplegia Foundation, Inc. is a nonprofit corporation under section 501(c)(3) of the U.S. Internal Revenue Code, EIN 04-3594491 © Spastic Paraplegia Foundation - 2024 Privacy Policy Privacy Policy What Information Do We Collect? 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